Dee Dee’s Story
First I WAS TOO SCARED: If I only knew signs of irregularity like bright red spots or dark “tarry” stools was a sign of blood in the stool. I didn’t notice the problem until I was literally bleeding with each bowel movement. This went on for quite some time and I was too embarrassed and too scared to go to a doctor.
Then I was TOO SCARED NOT TO SEE A DOCTOR: The pain was so severe like a piercing knife through my spine I knew something was wrong. My gynecologist said to me the blood was too excessive and was going on for far too long and was certain it was not related to my nerves. He gave me the name of a proctologist to make an appointment for a colonoscopy and that’s how they found the polyp. As a result, my surgery warranted an irreversible colostomy. After enduring 22 radiation treatments only lasting 22 seconds each session, this surgery lead to an ileostomy, due to post-radiation burn and other post-surgery complications. My doctor told me if I would have only come to him when the symptoms first occurred he could have removed the polyp and we would have avoided all the rest. If only there was a recall button.
By sharing my story I hope to bring further awareness to the importance of early testing and detection by blogging (https://chatwithdeedee.wordpress.com/), social media and fundraising efforts. In my blog, I will cover a number of topics from Colorectal Cancer (previous posts ‘Warning Signs Ignored‘, ‘Cancer Surgery & Radiation Treatments’, ‘Complications of Radiation Therapy‘, ‘Unexpected Encounters – Power of Love’, ‘Refusing to Quit’ , Sharing Our Story Helps Us Begin to Tackle Some of the Tough Questions Together, Ileostomy Nutrition: What can I eat after my surgery?, Empathy: How We Can Be Better at Listening and Responding and My MISSION to discussing practical tips about dealing with a Colostomy and Ileostomy, Lymphedema, Neuropathy, Hip Surgery, UTI, Fractured Pelvis and much more. I will also share dietary tips despite limitations from a personal, first-hand perspective. I will also touch upon the treatments and medications that have helped me along the way (disclaimer).
I know that I could have never done it without the Lord, my family, my church family and friends. Alone we are weak, but you are not alone. There, but for God’s grace, go I not only to share my story, but to listen to your stories and questions and help you on and through your journey (e-mail Dee Dee Click Here). I will help to bring awareness to organizations and people in need (like the Osto Group a non-profit offering a hand up to those who do not have insurance for ostomy products) and much more I’m sure.
This blog has been a long time coming. I’ve shared my desire with my family to write a book for years about my journey, but I just could never get the momentum to get it done. My daughter encouraged me to share my story in the form of a memoir, as a blog which we will later publish into a book. With encouragement, skills and continued support it is my desire to bring to many a message of hope, strength and God’s grace. As my children and I have discussed and molded this blog memoir project we’ve also been inspired to combine this with a Facebook page (giving others a chance to share their story), fundraising for the cause in support of CRC awareness.
I know my drive and perseverance to fight was what helped me, thank the Lord. You must make an active choice to fight for your life as I did. I often cry out to the Lord and especially when we are going through a very tough time it’s difficult to pray or think of scriptures, but I would remember and want to share with you that the Lord refuses to quit on us. When we are too weak to pray the Holy Spirit intercedes with God’s will on our behalf (Rom. 8:26-27). That comforts me immensely and I hope that it will comfort you too.
Would you believe that just a year ago I didn’t even know how to turn on a computer! That, too, was another big leap for me, but I did it! So here I am, typing to you, hoping the Lord will use this story to bring you hope. May the Lord equip you and give you hope and strength to live life abundantly beyond your limitations!
Thank you for joining me now let’s starting chatting…
With love and God’s Blessings,